Charitable Purposes Committee Member- Engagement

DEBRA is seeking members for its Charitable Purposes Committee to inform and develop the Charity’s evolving care and research strategy. Our Charitable Purposes Committee advises our Board of Trustees and is responsible for ensuring that the Charity’s resources are used effectively to support our provision of lifelong care and support for sufferers of the genetic skin disorder Epidermolysis Bullosa, and to support our investments in cutting‑edge research to find a cure for this debilitating condition.

Key Responsibilities

• Review DEBRA UK’s Research & Care Strategy as it relates to research, health and community support and social policy on an ongoing basis.
• Receive and review reports from medical and scientific experts on current research activities.
• Determine, taking appropriate advice, the priorities for care and research expenditure each year.
• Oversee collaborative partnerships on care and research.
• Develop memb...